So in the last couple weeks I have had my 4 month Brainiversary. In some ways it feels like only yesterday I had the surgery and in others it feels like years ago. I'm really very thankful to be here and to be having this amazing life with my family and friends.
I'm on the second day of 1/4 dose of my original medication. It was the only thing around at the time that was making any difference at all to my quality of life and over the years it has caused hair loss, kidney damage and a pretty nasty rash on my face which flares up from time to time. Today is not very comfortable, my head is aching. I'm hoping over the next couple of days it settles down some more. I see my doctor again in a week so we'll see what she says about it all then and if we can do done to ZERO!!!! I really hope so!