So in the last couple weeks I have had my 4 month Brainiversary. In some ways it feels like only yesterday I had the surgery and in others it feels like years ago. I'm really very thankful to be here and to be having this amazing life with my family and friends.
I'm on the second day of 1/4 dose of my original medication. It was the only thing around at the time that was making any difference at all to my quality of life and over the years it has caused hair loss, kidney damage and a pretty nasty rash on my face which flares up from time to time. Today is not very comfortable, my head is aching. I'm hoping over the next couple of days it settles down some more. I see my doctor again in a week so we'll see what she says about it all then and if we can do done to ZERO!!!! I really hope so!
Friday, June 10, 2011
I am still in the process of recovering from my surgery and as time goes by it has become more and more apparent that my memory has gigantic gaping holes in it. It has effected both long and short term memory. Last month I became very depressed about it all. I was very frustrated that I couldn't remember things and that parts of my life for all intents and purposes had "vanished". So things that have been automatic for me most of my life are now things I have to think about, concentrate on or are just inaccessible.
I have been doing some "brain training to help recover my memory and get my brain back into working order and it is slowly improving. It is however going to be a long process. I realise and accept that now. Part of the problem I was having was that I wanted it to be fixed NOW or yesterday. There is no magic pill, band aide or wand to fix this. It will take time and work to repair. So I will take it easy, do what I can and the parts that can be fixed will be fixed and they parts that can't ... I will cope with. I am thankful that I am still here and that I was able to have the surgery done before the tumour took my life.
Sometimes a change of attitude makes all the difference. So I am back to looking on the brighter side of life and will be overcoming the challenges that come my way the best way I can